Helping to ensure accurate testing for early detection of genetic diseases
CLINIC PARTNERS
Our clinic partners work directly with patients and families to provide information about the project and coordinate participation. The clinic partners listed below are currently enrolling participants. Please contact your clinic's site coordinator to learn more. If your clinic is not listed, contact a nearby clinic on the list or contact us. We also welcome clinics throughout the US to join the project. If would like a clinic partner in your area, please contact us.
California Pacific Medical Center
Children’s Hospital Los Angeles
Children's Hospital of Orange County
Emory Department of Human Genetics
Kaiser Permanente Northern California
Loma Linda University Medical Center
Stanford University Medical Center– Cystic Fibrosis Center
Stanford Children's Health – Medical Genetics
Principal Investigator:
Director, Adult Cystic Fibrosis Care Center
Site Coordinator:
Anna von Bakonyi, LVN
Research Coordinator
415-600-1107
Principal Investigator:
M. Carmen Reyes, MSN, NP
Pulmonary Nurse Practitioner and Cystic Fibrosis Research
Site Coordinators:
Daniel Quevedo
Research LVN
Esme Mason, RN, BSN, CPN
Clinical Research Nurse
Principal Investigator:
Jose Abdenur, MD
Director, Metabolic Disorders
Site Coordinator:
Nina Movsesyan, PhD
Supervisor, Clinical Research Coordinator
Principal Investigator:
Dawn Jacob Laney, MS, CGC, CCRC
Director, Emory Genetic Clinical Trial Center
LSDC Program Leader
Site Coordinators:
Hannah Davis, MMSc, CGC
Genetic Counselor
Kayla Quirin, MS, CGC
Paul M. Fernhoff Genetic Counseling Fellow
Principal Investigator:
Bryon Quick, MD
Director, Cystic Fibrosis Program
Site Coordinators:
Carolyn Beebe, RN
Clinical Trials Research Nurse II
Marina Rumore
Clinical Research Coordinator
Principal Investigator:
Division Head of Genetics
Site Coordinator:
Kathryn Moseley, MS, RD
Assistant Professor of Pediatrics
Principal Investigator:
Yvonne Fanous, MD
Director, Cystic Fibrosis Care Center
Site Coordinator:
Nancy Wheeler-Dobrota, RN
CF Nurse Clinician – Specialty Team Centers
Principal Investigator:
Carlos E. Milla, MD
CF Center Director, Pediatrics
Site Coordinator:
Tina M. Conti, BSRC, RRT, RRT-NPS, C-NPT
Research Coordinator
Principal Investigator:
Chung Lee, MD
Clinical Assistant Professor, Pediatrics – Medical Genetics
Site Coordinator:
Thu Quan, MBA/HCM, CCRC
Sr. Clinical Research Coordinator
Principal Investigator:
Ngoc Ly, MD, MPH
Chief, Pediatric Pulmonology, Cystic Fibrosis and Sleep Medicine
Co-Director, Cystic Fibrosis Center
Site Coordinators:
Courtney Moreno
Clinical Research Coordinator
Joseph Dang
Clinical Research Coordinator
Kellen Brown
Clinical Research Coordinator
Principal Investigator:
Sudhakar Reddivalam, MD
Director, Pediatric Pulmonology
Site Coordinator:
Samuel Reyes, MS, PhD
Clinical Research Coordinator, Research
Principal Investigator:
Preston Arndt, MD
Associate Director, Ventura Cystic Fibrosis Clinic